We took Dominic to the pumpkin patch today

We had a really good time today visiting a nearby pumpkin patch. A neighbor friend and her son joined us so it was extra fun. Here are a few pictures, enjoy!

Benign!!!

I was pretty sure the biopsy results would be benign, but I am so happy to know for sure that I'm all clear! WOOT!!!

Thank you all so much for your kind words, support, prayers, and positive thoughts. Honestly, it really makes a difference to have that energy out there working for me and I feel truly blessed having been a recipient. I don't take this gift for granted. I hope everyone has a wonderful weekend! Smooches!!!

Be Yourself by AnnaBV Designs

Anna has a new kit and alpha available today called Be Yourself at ScrapMatters and ZigZag Scraps. This kit really celebrates the individuality and uniqueness that makes each of us our own person. The colors and textures are so rich and easy to scrap with that I ended up making two layouts for her. There is also a set of coordinating quickpages!

Be Yourself






My layouts:




Thanks for looking!

Ouch!

I had my biopsy today. It was a lot more involved and uncomfortable than I thought it would be and I'm quite sore tonight. Because I process my thoughts so much through writing, I'm going to share this experience. I hope none of my women friends ever have to have one of these biopsies and the worry that comes along with it. (And if you are bothered by graphic medical descriptions, then don't read this post, lol.)

I had a stereotatic core needle biopsy which meant I laid facedown on a table with my left breast dangling through a hole in the table. The breast was compressed like for a mammogram, and oy, did they squeeze that puppy! They had a woman assigned to be with me that was there just for support. She kept a hand on my back, fed me a cough drop (this stupid cough just won't let up yet), and was generally an all-around dollbaby; I was really grateful for her presence. The tech explained the procedure very well and talked me through the whole thing. The doc came in after I was washed and prepped. He starting injecting the lidocaine and because I was compressed so much, I hardly felt it.

The core needle then gets injected. I heard and felt a pop, felt a lot of pressure, and some pain. They took a scan to ensure correct placement, then began taking samples. I felt the first sample, ouchie, and I wasn't supposed to, so the doc injected more anesthetic. I had to hold completely still. He took samples in a clockwise direction at 12-2-4-6-8-10. That took about 20 minutes. Then he injected a titanium clip to mark the place of the biopsy. I heard the doc say, "Whoa, that was weird. I don't think I've ever seen that before." I started laughing and said, "Ummm, doc... that is not something a patient wants to hear!" He laughed too and said that the clip came back out with the core needle but got stuck under the skin. So he had to put in a second clip. More scans to check placement, then 10 additional minutes of compression to help with bleeding and swelling.

So I should have results on Friday between 3-5. I'm certain these calcifications will be benign but can I say again? ... OUCH!

A viral cause for chronic fatigue and fibromyalgia

A friend (thank you, Heather!) shared a local news story with me that a human pathogen retrovirus has been found in patients with neuro-immune diseases like chronic fatigue syndrome and fibromyalgia. They have also found this virus present in some children with autism! Gasp! The implications are huge... they could possibly create a vaccine for this retrovirus. I don't know yet what it means for those of us living in chronic pain and with fatigue, but preventing it in others is so exciting.

Last week, researchers from the University of Nevada, the National Cancer Institute and The Cleveland Clinic announced the discovery of antibodies to XMRV (gammaretrovirus xenotropic murine leukemia virus-related virus) in 95% of patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). In a small sample of children with autism, 40% of them tested positive for the virus.

From what I understand, this is a virus that is like HIV in that it is blood-borne and that you may carry the virus but not show full-blown symptoms. It can lay dormant then some environmental trigger like stress, illness, or immunization sends the immune system into overdrive and the virus gets activated.

I'm extremely interested in this research. I've seen countless specialists over the years for my fatigue and pain and I've been told everything from "take vitamins," "just take a walk everyday," "there is nothing wrong with you," and on and on. I only manage symptoms and I have to be a strong patient advocate for myself if I want to have any quality of life. Hopefully this discovery will lead to new treatment options. I'm also curious to see how the autism link plays out with XMRV.

The Lightness of Being by Becca and Designs by Helly

Becca has a new collab kit in her store today called The Lightness of Being. It's full of soft, sweet elements perfect for scrapping all kinds of photos.

The Lightness of Being


My layout:


Thanks for looking!

The untitled post

I tried to come up with a title for this blog entry and these are what I could come up with...

Mammogram
Not going to borrow trouble
Need some positive vibes
Awww crap

So I'm leaving it untitled.

I turned 40 this summer so that means I was due for my first mammogram (I actually had one in 1999 because I have fibrous breast tissue that feels quite lumpy and my ob/gyn wanted to make sure all was good). I found a small lump about 5 weeks ago and decided I should get my baseline scan done as well as check out the lump. My mammogram was today.

The good news is that the lump is nothing... just a mass of fibrous tissue.

The bad news is that in my other breast, they found some calcifications. Usually these are benign and are nothing to worry about. Usually. My calcifications meet the criteria for suspicious because they are clustered in an unusual shape and there are a few odd calcifications just off the perimeter of the cluster. The radiologist wants the cluster biopsied, so I am getting a stereotactic core needle biopsy done next Wednesday. It's done with a local anesthetic and I should get the results by Friday. It's about an hour long procedure.

I'm not freaking out at all. Frankly, I just don't have any energy to worry about it right now. My mom and I were joking that I could pencil in worry time on Monday from 2-3... I've got so much going on.

I'm finally recovering from the swine flu. Jenny is going back to school tomorrow as is Anna. Dominic is still very sick and Curtis is not much better either. I've been taking care of various sick children (and yes, I'm counting my husband in that category) for 10 days now. I need some space. I'm certain these calcifications will turn out to be benign because they have to be. Right?

Bad dog

On the one day last week when both kids were at school (I think that was Wednesday, I don't quite remember... this swine flu has kicked our behinds!), our Charlie puppy decided that he would eat Dominic's Bakugan sticker book. Dominic opened the front door and started wailing. LOL. The pictures say it all.

An update on Anna

For those of you who don't follow me on Facebook, Anna started coughing Wednesday coupled with a little vomiting. On the way to school yesterday, she coughed a big cough and threw up just a little bit, so I kept her home for about an hour then took her to school late since she seemed fine after that. The school nurse called me an hour later to pick her up because she got lethargic and feelign worse, and she didn't go to school today either. Apparently, the flu and H1N1 is going around our campus and Anna had the early symptoms of H1N1.

After a very restless night and tough day, we got into the ped this afternoon. She does NOT have the flu or H1N1. Yay! Just a garden variety virus. Even if she did have either version of the flu, our ped would not give her the Tamiflu. He said that it causes an increase in the virus across the blood-brain barrier and is causing some psychotic and suidical behaviors in some children, and that would be especially possible because Anna is on Risperdal. Anna does not need to be dealing with that right now! So she would have had to suffer through the illness... thank goodness it's not the flu. Hopefully, she'll make it through this virus with no seizures. She did start running a fever last night and I was able to get Motrin in her right away. So far, so good. Except that she feels miserable, poor little pumpkin.

While we there, Anna was in full perseveration mode about getting a wheelchair. The ped fully supported mommy's position that Anna could not get a wheelchair because she didn't need one. She kept repeating herself, tried to leave the exam room (we had to bar the door), then got angry and violent (she threw her shoes at the doctor). We got an emergency referral to a child psychiatrist and OCD was mentioned. OCD? Very interesting. No one has ever mentioned this label in conjuction with Anna... her behaviors have always been attributed to autism.

I had been trying to find a child psych this last week with no luck. They either don't take our insurance or aren't seeing new patients. One guy wanted us to fill out a patient application just to get on a waiting list to be a patient, then another for an appointment after acceptance! Crazy. So this was good that the ped got to see what we've been dealing with for the last 17 days. Like I said before, you adapt quickly to a new normal and you forget just how altered your reality has become. It's disturbing to see how affected Anna is right now.

Mellow Fall and Sweet November Rain by AnnaBV Designs

Happy Friday!!! AnnaBV Designs has two new kits out today and a new CT to announce! Anna is also a guest designer for ZigZap Scraps for October and November, so there is a lot going on for her.

Anna's first new kit is called Mellow Fall and it is available at ScrapMatters and ZigZag Scraps. It is full of richly colored fall elements with an offbeat hint of violet in the palette. I'm sure I'll be reaching for this kit all season!

Mellow Fall:



My layout:



Sweet November Rain is a beautiful soft kit with that whimsical feel of wanting to play in the rain. It is available at ScrapMatters and ZigZag Scraps.

Sweet November Rain:



My layout:



Thanks for looking!

September 2009 Siggies Slideshow

Here are my siggies for the month of September. Thanks for looking!

Klonopin helping

A quick update to say that I think the Klonopin is helping Anna a little. She is not perseverating as much and she has not attempted to leave the house this weekend without permission. She only tried to leave school a couple of times Thursday and Friday instead of constantly. We still have a long way to go to get our little girl back, but it's a start.

Thanks for all of your support.

Mayan Families Needs Your Help

Amigos of Mayan Families,

Many of you may be aware that Guatemala is facing a huge crisis. The President of Guatemala has called it "a calamity". The drought has caused severe food shortages and the cost of basic food items continues to rise daily. According to Unicef almost half of Guatemala’s children are chronically malnourished—it has the sixth worst record in the world. In parts of rural Guatemala, where the population is overwhelmingly people of Mayan descent, child malnutrition reaches 80%. A diet of little more than tortillas does permanent damage. This is the only diet that many families have right now.

In Guatemala, which has some of the worst levels of chronic malnutrition, children have already started dying. In rural areas, thousands of families can no longer afford to eat. Malnutrition rates are rising among the very young, and the elderly. We have many mothers who are not eating, just surviving on a few tortillas a day so that they can give the food to their children. Children who suffer from chronic malnutrition are not in immediate danger of starvation, but they will face stunted growth and a diminished mental capacity. The children don’t look underweight — they just look tiny. Some have light hair, others have patches of hair missing, some are even bloated. Families that before could afford to feed their children, are now struggling but the families that were already living without enough to eat are now facing daily hunger and the children are quickly becoming malnourished and sick. Daily, we have families coming to our door who have nothing to eat. The worst affected are single mothers whose wages were barely able to keep the family together before this crisis. Now, they just do not have enough to feed their children even the very basics.

Through your help, Mayan Families currently feeds over 110 children everyday at our three pre-schools. These are children that have been identified as malnourished or are in danger of becoming malnourished. We have started a feeding program for the Elderly this week. Many of the elderly people do not have enough to eat and are becoming very malnourished and weak. We need your help to be able to continue to feed these people and the many more who need help. This is a crisis situation and while we believe in long term solutions...right now... people who are hungry cannot wait for crops that will grow during a severe drought or chickens that will lay eggs. They need help today. The biggest need and challenge facing the indigenous people of Guatemala this year and in the coming year will be the struggle to have enough to eat. The United Nations children's fund, UNICEF, reports that Guatemala has the worst malnutrition problem in Latin America, even higher than the 35.2 percent average in Africa!

October 1st is Children's Day in Guatemala. We traditionally celebrated this with a pinata and cake. This year, in the hopes of giving children food, we are asking for a small donation of $10 or more to be able to provide a child with a bag of corn and several pounds of beans to take home. Beans are sometimes the only protein the children will receive. We need food for general distribution... this is for families that are in desperate situations, many of these will be single mothers.

A 100 lb bag of corn is $35US. This will supply a family of five with tortillas for two weeks.
A 100lb bag of black beans is $90 US.
A carton of 30 eggs is $5US.
A basket of food with a cooked chicken is $35 US.

To help a family get through this crisis, please consider donating today. Any donation of any size, to help feed a child and their Family will be greatly, greatly appreciated. We don't want to turn people away that we know can be helped. With your generous donation, we can help those who are in terrible situations and give them hope. If you would like to nominate your sponsored student to receive your gift of food, we would be very happy to do that.

TO DONATE: Please click on the link to visit our website and donate online at
Donate Online
and put it in the General Donation area, "Where most needed". You may also choose to send your donation in the form of a check. Please make it payable to Mayan Families and send to:
Mayan Families
P.O. Box 52
Claremont, N.C. 28610

We are asking you to join in our efforts to help the Guatemalan people by giving a tax-deductible donation. We hope that you will be able to help us with a donation of $25, $50 or more, this will feed a lot of children. However, any donation no matter how small is always welcomed and appreciated. We make every dollar count! We are asking that all contributions - personal, employee and corporate - be made as soon as possible.

You can make a difference right now, today! Thank you for your support.

Best wishes,
Sharon Smart-Poage
MAYAN FAMILIES
Tel: 619-550-2608
ABOUT US: Mayan Families is a small non-profit group working in the Highlands of Guatemala. We are a registered 501(c) (3) Non Profit Charity. Your donation is tax deductible.

Thank you once again for supporting Mayan Families!

From Holly: Our family has made a small donation so that Irma (our sponsored student, #778) and her sister will have food to celebrate Children's Day. Please consider donating just $10, it can make such a big difference! Thank you!!!

Talked to Anna's class and her neuro

I am overwhelmed.

I talked with Anna's class this morning while she was out of the room. Her teacher offered me a chance to do it or the school counselor could've come in, but we thought I might offer a more personal touch. I was really nervous and not quite sure which approach I should take. My exceptional women friends that meet once a year for a retreat (moms I met on iVillage when Anna was a baby and they all have children with special needs) made some great suggestions about how to talk to the kids. (Thank you so much, ladies! You have no idea how much you helped and how I felt your support while I was there today.) I made it very Anna-centered instead of talking about just autism and how Anna is different.

I discussed autism, the five senses, how she was born with it, how it affects her. I talked about the things that Anna loves (SpongeBob, AFV, sports, frogs, baby dolls), things that scare her, things that are easy for her, and things that are hard for her. I focused on how she is the same as them. I talked about how Anna (with more emphasis on Anna's brain) reacts to stress and fear. The kids had TONS of questions. I was there for 45 minutes. I ended the session with asking them to share some things they really like about her and how they could be a good friend to her. I think it went pretty well. They are having a hard time understanding why Anna wants to leave class and come home, why she asks the same things over and over, why she pushes/shoves/hits, why she wants a wheelchair so bad, and why she refuses to work.

I told them we are having a hard time understanding too.

Things have really changed this last week. It's tough to realize when you are in crisis mode with your child, how much it consumes you. All of a sudden, your reality is completely different (again) and when you stop to take a breath, you realize that this is really hard and it really sucks. I can't imagine what it's like to be in Anna's head right now. I can't imagine that she can find any kind of equilibrium. Just when I think I have a handle on how to be her mom, something changes, and I really question my ability to parent her well.

There are days when it feels like I'm juggling so much, I don't know if I can keep all these balls in the air. Between Dominic's challenges (setting up OT appointments and arranging changes in his classroom), Jenny's senior year stuff (I think I'm supposed to meet with her counselor Friday to talk about college planning and applications?), my appointments (did I tell you I found a lump in my breast? I'm seeing my GP tomorrow), Charlie the puppy (he starts intermediate obedience class Saturday), being the SEPAC representative for our campus (I'm supposed to volunteer Saturday for a parent summit and be in a mock ARD), and Anna (the list is too long), and all the regular crap (I bought a laptop three weeks ago that I can't get calibrated properly and have spent hours and hours on the phone with customer service, now I have to prepare to send it in for repair)... I'm so overwhelmed. I know what I need to do... take one day at a time, one task at a time... but actually doing this without this internal churning in my head and heart... well, I'm a little lost in it all right now.

Writing does help me. Sharing helps me. Making siggies and such really helps me. So I thought I would put this all out there and maybe get it out of my head. Sorry for the vomit of overwhelms... I appreciate you reading all of that, lol!

I just don't know how to help her or what to do, and that is just so very sad for me as a mom. I talked with Anna's neuro yesterday and tonight we are starting her on Klonopin for anxiety. She historically hasn't reacted well to most medicines so we are nervous. I'm keeping my fingers crossed that it will help her and that she can start to manage and cope again. As I was leaving the school, one of the teachers said that she was worried about Anna... yesterday she was in Anna's class (the administration now has Anna supervised 100% of the time since she is such a flight risk right now) and said that in a split second of distraction, Anna was out the door. I just wish I knew what's going on in that cute, little confused brain of hers.

Occupational therapy evaluation and an update on Anna

Dominic has his OT evaluation this morning and what a suprise! It looks like he has proprioceptive issues caused by sensory integration dysfunction. I would never have guessed. Anna has very intense sensory issues but they are the opposite of what Dominic has. Dominic needs to move his body constantly to know where his body is in space. This could be the cause of his impulsivity, hyperactivity, and even poor fine motor skills. It takes practice to learn how to color and write and he needs to move too much to sit still. The OT has recommended therapy twice a week initially so we are going to start that as soon as possible. There are many things his teacher can do to help him prepare for desk work; I'm excited to see what changes will happen once we implement some new strategies.

Anna is continuing to struggle at school this week. Last week, Anna left her classroom without permission three times on Tuesday once making it to the library before being intercepted and once she picked up another student and actually left the building to go to a portable at the back of the school property to see her resource teacher. We thought at the time that was because the 2nd grade class had a walking field trip that morning and the change in routine disrupted her. Well, she has continued to leave her class several more times and she has gotten physically aggressive with her teachers and peers. Anna is refusing to do any work, insisting that she wants mommy. She wants to call me and continually is asking for me. Her poor teacher looked so defeated yesterday.

Last night, I took Dominic out to dinner as a reward for really turning things around at school. He is no longer chewing on his shirts and he is following the rules and not getting in trouble. I also wanted Anna to have a break from me since she is getting so incredibly dependent. My mom kept both kids for a sleepover on Saturday and Anna actually cried when I left, kind of like separation anxiety. Curtis had to take some work calls while Dominic and I were gone and when he was finished, he realized that Anna had disappeared. He discovered his car door open and the car running! Anna was down the street. When he asked her why his car was running, Anna said that she was going to try to find me. I nearly threw up when I heard this. Anna was in her room crying when I got home since daddy sent her there for the rest of the night.

I've emailed her neuro just now to talk about what might be going on. We have several theories...
~ She is pre-ictal and might have a seizure soon.
~ She is spoiled and is manipulating everyone to get what she wants.. or is just simply being attention-seeking.
~ She is dealing with anxiety and fear, and that is driving her perseveration with seeing mommy and wanting a wheelchair. Having the routine change last week at school crossed her threshold for coping.
~ It's a combination of these issues.

We think the third scenario is most likely. It takes a lot of her coping skills to deal with school and such a large classroom of children. If we operate under the assumption that she is anxious, then we can intervene in several behavioral ways. First, lots of reassurance. Break the day down into small chunks. The teacher can say, "I know you want to see mommy and you will see her at 2:45. First we need to do ___, then we will do ___." If she begins acting badly, ask her, "Anna, are you scared? Do you need a break? When I see you make a better choice, you can have a break. Can you try that in a different way? Can you ask me in a different way?" etc. I think the wheelchair issue is driven by a 2-year fear/fascination of a little girl who is in FLS... this has been a long-standing issue for Anna.

We are obviously pretty freaked out about her safety right now. Thank goodness she didn't figure out how to put the car into gear... I shudder to think what could have happened. I think she is capable and determined enough to leave school to try to walk home to find me. She will really need intense supervision for the short-term until we can figure out what is really going on with her. The car keys will be kept hidden. I'm worried that she is not capable of learning right now and is disrupting her classroom too much. We need to find a good balance between expectations and reality. This could be a big cry for help; she is a people-pleaser by nature and all the people around her are not happy with her right now. I think going through the day feeling overwhelmed and anxious could cause all of these symptoms. It may be time to try an anti-anxiety med. We're not sure what to do next. Hopefully her neuro will have some advice.

A funny story about Anna

So Anna has had an off week. She's been difficult at school and a little tough at home. On Wednesday, Anna left her classroom three times. The first time she wandered around in the hallway for awhile before coming back in. The second time she made it to the library and the librarian brought her back. The third time, Anna decided that since they had a field trip that morning (which is probably why she was so off that day... the change in routine) and she hadn't seen her resource teacher, she would just leave and go see her by herself. On the way, Anna picked up another student, actually left the school building, and went out to the back portable where her resource teacher is housed. She was just determined to do her own thing and no one was stopping her! This is important to understand her state of mind when reading the next little anecdote.

All week, Anna has been perseverating about wanting a wheelchair, I mean like it's completely taken over her brain. We've talked about how she can't have a wheelchair because she can walk and how they are only for people who need them. She just can't let it go. It's the first thing she talks about in the morning, the first thing after school, the last thing before bed, and it even wakes her up in the middle of the night. I don't understand why her brain does this to her. Yesterday was a particularly bad day at school that included her shoving and hitting other students. When she got home, I only talked about {not} getting a wheelchair once with Anna; then I told her I wouldn't discuss it anymore. She got so worked up about it that she had a full-out meltdown in her room for 20 minutes. Then she got calmed down and said, "Fine! I just go myself. I go to the doctor's office and get a wheelchair!" I asked her how was she going to get there? She said, "I will drive the car!" She then stomped away, returning about 5 minutes later with my driver's license and cash in a ziploc bag saying, "Mommy, I can't find your keys." OY VAY!!! She's only 8 years old! I really think that if she had found my keys and I wasn't paying attention, she would have attempted to drive the car and you all would be reading about us in the newspaper! She is too much. We all had a good laugh and were impressed with her determination and logic. Thank goodness I still had my car keys in my pocket!

Met with school staff about Dominic

Whew, it's been such a busy week. I met with the Assistant Principal and Dominic's teacher on Monday to talk about the test results from the child psychologist and strategize on how to best help him be successful in kindergarten. We were prepared for it to be a 504 meeting if it was necessary. To be quite frank, I really didn't know much about the 504 plan... IEPs are what I'm accustomed to.

It was a very amicable meeting. Dominic's teacher had lots of positive things to say about him, especially in how much he's improved in just the first few weeks. His behavior is actually pretty good and the teacher was surprised to hear how much he struggled at preschool and at home. She said that he definitely needs more attention and redirection, but overall follows the rules, is well-mannered, and respectful of her and his peers. He seems to have little control over his body, constantly moving, swinging his arms around, fidgeting, wallering in the floor during circle time, etc., so his peers are fearful that he is going to bump them or hit them. The teacher is going to make a large taped area on the carpet for him so that he has more room when sitting. She lets him get up as often as he needs to and allows him to stand during seated work. We're going to implement the OT recommendations after he starts therapy (his evaluation is next Tuesday) at school and they are going to start him in a social skills group at school. They are also going to consult with the TAG (talented and gifted) team on how to help him not be bored during kindergarten; TAG doesn't officially started until first grade.

Overall, I'm very pleased that they are so willing to help him, especially without a formal plan in place. We can always revisit the 504 in the future if these changes aren't enough to make a difference.

My Charming Boy by Becca

Becca has a new kit out today called My Charming Boy available at Enchanted Studio Scraps. Isn't it darling?


My layout:


Thanks for looking!

August 2009 Siggies Slideshow

Thank you for your input about seeing my siggies. Here's what I made in August!

Thanks for looking!

What would you like?

I am falling a little behind on my regularly scheduled posts. At the beginning of each month, I like to show the previous month's siggies in a slideshow. It takes a while to wait for them all to display in that format however. Since I have some family who reads this blog, it's a nice way to show them what I've been up to... I'm not sure anyone else cares, lol.

So my questions are these:
1. Do you want to see my siggies each month?
2. If yes, would you prefer a slideshow or have them displayed in the post?

Thanks for taking the time to answer!!!

Make Me Smile by AnnaBV Designs

Oops! I totally forgot to post Anna's new kit on Friday, sorry about that! Anna has a new kit called "Make Me Smile" available at ScrapMatters. It's so adorable with lots of fun elements and awesome polka dot patterns!

Make Me Smile


My layout


Thanks for looking!

Dominic's child psych test results

Wellll.... isn't this interesting??? It looks like Dominic may NOT have ADHD after all! The pyschologist did IQ and achievement testing and our little pickle is smart! His overall IQ tested at 124 and his achievement functioning tested at 132.

Here's the really interesting part about the ADHD. On the IQ test, three subtests indicate excellent performance with attention (working memory), concentration (cognitive efficiency), and delayed recall (scoring 132, 126, and 138 respectively). Because of these scores, it is highly unlikely Dominic has ADHD!

There are three types of ADHD:
1. Inattentive
2. Hyperactive/Implusive
3. Combined Type

Previously, Dominic was diagnosed as Type 3, Combined Type ADHD. Now Types 1 and 3 can be ruled out. There may still be a possibility that he is Type 2, but the doc recommends making some environmental changes first to see if the hyper and impulsive behaviors stem from being under-challenged. If the changes do not make a difference with these behaviors, then we'll feel more confident that Dominic has an organic problem with impulsivity and hyperactivity. He's testing at the 2nd grade level for reading and math. Writing in on grade level (kinder) and is a source of great frustration to him. Little did I know that he has fine motor delays as well as trouble with some oral language; and the doc tenatively diagnosed him with Developmental Coordination Disorder and Phonological Disorder. She recommends occupational therapy and a home-based writing program to help him with the writing delays ("his impairments in fine motor cause him to find seated and written work laborious and almost unbearable"). He could also benefit from some speech therapy to help with some pronunciation issues he's having (though I think this is a mild issue since he is completely understandable). Emotionally, Dominic does have some trouble with social skills and being oppositional. She recommended a social skills group and environmental changes. Again, if these changes don't make a difference in his behavior, then we might be dealing with something more substantial like Oppositional Defiant Disorder (I hope not).

So we have a long list of recommendations:
1. Private occupational therapy for fine motor delays and a sensory dysfunction evaluation.
2. Speech therapy evalation for phonological processing problems.
3. Challenging academic material, gifted and talented program.
4. 504 plan for fine motor coordination and behavioral challenges.
5. Modifications to curriculum for fine motor issues (use a pencil grip, assessments not based on writing, etc.).
6. School-based social skills group.
7. Home-based instruction writing program.
8. Individual and family counseling.

Now I need to set up private evaluations for OT and ST. I need to talk with his teacher, principal, and school counselor to create a 504 plan and see what options we have academically. Our school does not offer a TAG (talented and gifted) program for kindergarten... it starts in first grade. I'm not sure how we will be able to challenge him now. If we can't find something to interest him, he will be so bored that his behavior problems will intensify. He's only had 1 good day at school so far.

Egad, am I glad I listened to Curtis about not continuing the ADHD medication! No wonder Dominic hated it. When he said, "Mommy, it makes me slow," he really meant it. I am so glad we went ahead with the psychological testing! I am feeling relieved that Dominic may not have ADHD (for his sake... I think having a brain that can't stop you before you start would be quite frustrating!) but I also realize that his issues will continue to be challenging for him. Sometimes it's easy to forget that he's just a 5-year old boy!